tag:blogger.com,1999:blog-6247419696486725071.post1116454011445053414..comments2024-02-04T19:16:14.979-08:00Comments on Illusion of Competence: Disability first: autism is not an accessoryZoehttp://www.blogger.com/profile/01262366138710367196noreply@blogger.comBlogger14125tag:blogger.com,1999:blog-6247419696486725071.post-8310841713231986332013-11-02T08:56:53.295-07:002013-11-02T08:56:53.295-07:00Well said! I have moderately severe ADHD, and I li...Well said! I have moderately severe ADHD, and I like what you said so much that I'm envious at not having a similar adjective I can apply to myself. "I'm really ADD" seems to be as brief as I can make it. I think Restless above has made the point succinctly for individual differences in label choices.Carolhttps://www.blogger.com/profile/11306216927789192128noreply@blogger.comtag:blogger.com,1999:blog-6247419696486725071.post-36551932834695197862013-11-01T11:43:18.311-07:002013-11-01T11:43:18.311-07:00Yes. How anyone thinks that having your entire br...Yes. How anyone thinks that having your entire brain and central nervous system differ significantly from the majority population is not a defining thing is beyond me. What it really means is, they aren't comfortable with someone who is different from them and need to pretend we're all the same.Viverrinehttps://www.blogger.com/profile/01269563588453505803noreply@blogger.comtag:blogger.com,1999:blog-6247419696486725071.post-38377405062968027472013-09-04T09:32:11.762-07:002013-09-04T09:32:11.762-07:00Beautiful conversation!!!!! Lots to think about as...Beautiful conversation!!!!! Lots to think about as a -- how to say this!!!!! - things that might or might not be involved: autism, adoption, attachment disorder, rheumatoid arthritis, ptsd, hot mom ;) , family... Full Spectrum Mamahttps://www.blogger.com/profile/11460737436704927666noreply@blogger.comtag:blogger.com,1999:blog-6247419696486725071.post-24922948865956474262013-05-24T20:21:08.251-07:002013-05-24T20:21:08.251-07:00I really like this description. The reason I descr...I really like this description. The reason I describe myself as a woman with chronic pain and mental illness is, I think, because although these experiences have been formative for me, a part of me likes to hope that these things are not intrinsic to who I am, and may even possibly go away some day. I think that's quite different from being autistic.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6247419696486725071.post-69620577052526325772013-04-02T07:14:52.257-07:002013-04-02T07:14:52.257-07:00"Because I like my disability, but more impor..."Because I like my disability, but more importantly, because it is a part of me that can never be separated from my personhood."<br /><br />thx for this post. been thinking about about this particular sentence at the end. i recieved a diagnosis at 30, and it was a painful thing to hear. i can't really explain it, but i struggled to come to terms with it. so i'm always curious about people who have a positive reaction, i try to learn something from it. and i'm particularly interested in reading about how language can shape perceptions. it's sort of like re-framing...the words do matter, can have a major impact on reality "feels" to us. so these kinds of posts always challenge me, force me to consider where i'm at in terms of labels, words, reactions. thx again.<br /><br />M (incipientturvy.blogspot.com)mhttps://www.blogger.com/profile/13570838005937684429noreply@blogger.comtag:blogger.com,1999:blog-6247419696486725071.post-24076404863391382282013-02-11T22:47:13.413-08:002013-02-11T22:47:13.413-08:00The first time I said, "I have autism," ...The first time I said, "I have autism," it just sounded so very odd to me that I stopped saying it and started saying "I am autistic." I have a friend who often says that she calls herself a woman, not a "person with femaleness," and that gay/lesbian people don't call themselves "people with homosexuality," so why should we call ourselves "people with autism"?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6247419696486725071.post-4982779139225145672013-01-25T07:38:44.246-08:002013-01-25T07:38:44.246-08:00A really good way to express it, I think. I curren...A really good way to express it, I think. I currently work with a cross-disability organization, and they use "person-first" language (and encourage it, as disability etiquette). I can sort of understand it in general terms, people not wanting to be defined by the fact that they can't walk, or are missing a limb, or they're in constant pain.<br /><br />But at the same time, when it comes to something as basic as the hard-wiring of the brain... how can it help but define us, at least in part? It affects the way we interact with the world in profound ways, ways that even people with "physical" disabilities (put that way because the hard-wiring of the brain *is* physical, but is considered mental) don't necessarily understand. Those who are blind or deaf from birth most likely understand us the best, of people not on the spectrum, and I know that in at least some cases, their cultures tend to prefer "identity first" language as well.<br /><br />Back at the beginning of the month, when I first discovered the number of blogs by adult autistics, I sent an email around work that I titled "Another Perspective on Person-First Language". I think I'm going to add this post to the list I'm keeping of those commenting on the matter.<br /><br />Thank you.<br /><br /> ;) tagAught (ASD, brunette, cat-lover)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6247419696486725071.post-28829761046579775572013-01-24T04:47:24.053-08:002013-01-24T04:47:24.053-08:00I like this. I wrote a paper last semester about ...I like this. I wrote a paper last semester about this and wish I had read this sooner as it has some very valid points that I missed the first time round.Anonymoushttps://www.blogger.com/profile/01553828713266333174noreply@blogger.comtag:blogger.com,1999:blog-6247419696486725071.post-91160919929423157662012-10-20T17:56:24.306-07:002012-10-20T17:56:24.306-07:00Opposite, thanks very much!Opposite, thanks very much!Zoehttps://www.blogger.com/profile/01262366138710367196noreply@blogger.comtag:blogger.com,1999:blog-6247419696486725071.post-52811339438903757412012-10-20T08:39:43.731-07:002012-10-20T08:39:43.731-07:00Hi! I love your blog. I just wanted to say that I...Hi! I love your blog. I just wanted to say that I shared a quote from this post on tumblr and it has been by far the most liked and reblogged thing I've every posted. This article (not to mention your witty and incisive writing) seems to resonate with a lot of people.<br /><br />Anyway, I don't normally comment on blogs, but I thought you might like to know. :)<br /><br />http://theoppositeofstupid.tumblr.com/post/31925388415/when-disabled-people-autistic-and-non-autisticAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6247419696486725071.post-47188913395852161952012-08-12T08:09:36.564-07:002012-08-12T08:09:36.564-07:00My son is autistic. Sometimes, when i introduce h...My son is autistic. Sometimes, when i introduce him, I say that he is autistic, and sometimes I don't. It depends on the situation and who I am introducing him to. He is autistic. That's a fact. It's an integral part of him. When I describe my son to someone, it's usually, he's 13 and autistic.Tammyhttps://www.blogger.com/profile/10930376233629623527noreply@blogger.comtag:blogger.com,1999:blog-6247419696486725071.post-80842149469790897572012-08-09T17:32:34.177-07:002012-08-09T17:32:34.177-07:00Really, really well said. Love the action figure a...Really, really well said. Love the action figure and the luggage metaphors!katie millerhttps://www.blogger.com/profile/09066919932013866984noreply@blogger.comtag:blogger.com,1999:blog-6247419696486725071.post-39092720844520300252012-08-07T15:24:41.428-07:002012-08-07T15:24:41.428-07:00Lately "but your autism doesn't define yo...Lately "but your autism doesn't define you" really annoys me. <br /><br />Because it just might. I'm not sure yet. I'm making up for a lot of lost time in figuring out how much it does and doesn't. Lots of people didn't tell me the truth about what I was and what I wasn't.<br /><br />So it might.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6247419696486725071.post-6671063116662817392012-08-06T20:01:44.767-07:002012-08-06T20:01:44.767-07:00Thank you for saying it so beautifully.Thank you for saying it so beautifully.Dyannahttps://www.blogger.com/profile/12284517594645076012noreply@blogger.com